Privacy
A member’s medical and contact information is private. We will not disclose it to other members, organizations, or industry.  Should a support-related-need arise to share information, we will contact the member for their permission.  If you feel your information has been disclosed without permission, please contact our main office. A member’s contact information will be filed at our main office.  For changes to your existing information, please contact our office.

Structure, Nominations, and Voting
We are not a 501(c)6, our Board cannot promote a business.  We are not a 501(c)4, our Board cannot engage in lobbying.  We are a 501(c)3 charity for support and education.  Members have the right to nominate and vote for our 501(c)3 Board.  Members who “Opt Out” from mailings cannot vote. Regardless as to whether a member chooses mail or email, voting will be handled by the U.S. Postal system. A ballot will be sent to a member’s U.S. Postal address from our main office. Elections are held every 4 years or when a position opens.

Complaints, Concerns, or Compliments
Members have the right to direct any complaints or concerns regarding our meetings or activities to a Group Leader for a region or our main office. A complaint or concern will be documented, treated with confidentiality, and resolved within a timely manner.  Compliments are appreciated and welcome too.